Skip to main content

Getting Serious About My Iron Deficiency Anemia - It's Hysterectomy Time!

WARNING: May be too graphic a post for some

I was diagnosed with Iron Deficiency Anemia more than thirteen years ago and have been treated with iron infusions for more than five years.  Although a hysterectomy has been suggested a few times over the years, I never took it seriously.

I am now.

So what has changed?

I am not 100% certain my anemia is caused by my cycle.  We've stopped my periods with the use of birth control pills.  I still needed infusions.  I've lessened the flow radically with Lysteda.  Still needed infusions.  Had to give up the pills because, after an extended time on them, I just felt down and lethargic (yes, even more lethargic than with my anemia...I felt the difference).  I quit the Lysteda because the migraines it caused became worse than the pain associated with my period.

But, my periods have become worse.  I did a crash diet a few years back and it seriously altered my cycles.  They were never great to begin with but they've become absolutely unbearable since.  My cycles now range any where from about 14 days apart to 45 days.  The first day, bleeding is lighter but every ligament in my abdomen and right thigh (isn't that odd???) feels like it is being pulled painfully and the cramps are bordering on labor type contractions (not quite that bad but getting close).  On the second through fourth days or so, I am suffering through terrible flooding events.  I can be sitting then stand up and not only will I bleed through enough to immediately soak a HUGE overnight pad but it runs down my leg and soaks whatever I am wearing.  Sleeping during these nights means I need to lay on top of beach towels because I will soak through even though I am sure to change my pad in the middle of the night.  After that, my period turns more normal but there are still the occasional flooding and cramping events and my period goes on and on and on.  This last one lasted about 23 days!

That can't help my anemia, right?

So, I am serious about the hysterectomy now.  I am scheduled next week.  At this point, the doctor will be taking my uterus, cervix, and tubes.  She will likely leave the ovaries which is fine because I really would prefer not to be thrown into menopause.

My infusions have also been more frequent.  I've been getting them every one to three months.  It may take awhile after the surgery but my hope is that they'll become more infrequent or stop altogether. 

I'll keep you updated.

Comments

Popular posts from this blog

Had a Hysterectomy! Did it FINALLY Cure My Iron Deficiency Anemia?

Last I posted, I mentioned the possibility of a hysterectomy.  Long story short (perhaps I'll blog about that next), my surgery was canceled because the insurance company decided the day before the surgery they would not pay for it!  To say I was a mess that day is a huge understatement. Fast forward, I sent the insurance company a long letter detailing my day-to-day existence with anemia and the side effects from my too-frequent infusions. They approved the surgery. I'll blog more on the experience of surgery but I ended up having a Da Vinci Robotic Hysterectomy.  The doctor made four small incisions and operated the controls from outside my body!  Let me just say, this surgery was far more difficult on me than I thought it would be.  Recovery has been slow but, reading online, I see that is common for many women which makes me feel just a bit better. About six weeks after my surgery, I had my bloodwork done.  I was a nervous wreck.  I didn't feel anemic but, then

When Insurance Turns Down Your Hysterectomy

So, in my last post I shared that insurance turned down my surgery THE DAY BEFORE the big day! My hysterectomy was originally scheduled to happen just before the holidays.  I had been so nervous this would happen.  I admit it, I was a pest.  I called the physician's office several times in the weeks leading up to the surgery just to see if insurance had approved the procedure yet.  Each time they said no but that wasn't unusual and there was no reason the surgery would not be approved.  I called my insurance company several times.  I was told each time that this was pretty standard and not to worry.  I was skeptical because our insurance company hasn't been the easiest to work with but I didn't push it. The morning before surgery, I called my insurance company.  The gal told me that coverage was denied.  She couldn't tell me why it was denied so I called my physician's office.  They hadn't even noticed that it was declined.  I was told to continue fastin

Waiting on Blood Work

It has now been a few months since my last infusion.  I love the Ferrlecit.  Although, two infusions is recommended, I've been doing one and then it is about three months before I need another.  With the Venofer, I'd have a series of five infusions over five or six weeks and still need a new round three to four months out.  This new iron is so much easier on me. I have been so fatigued the last few weeks.  It's just that fatigue that makes it hard to get out of bed and with a teen and a tween, I just don't have that luxury.  I have to get my son to classes.  He also does tae kwon do and Scouts.  My daughter dances most days of the week.  I also homeschool my daughter.  As hard as it is, I do function but the fatigue is overwhelming.  One nice thing is that I've been falling into bed at night and sleeping hard for eight to nine hours.  Always appreciate uninterrupted sleep. So, today I had my levels tested.  If my ferritin is below 10, I'm sure I'll be in