I can tell when I just start feeling utterly exhausted that an infusion is likely in my near future. Sometimes my ferritin levels are borderline (around 10) and we put it off for a month.
Usually when my ferritin levels get to about 15 or below, I find it harder and harder to get through a day without napping. Many days I don't have time to nap and find my brain just feels a bit foggy and have no energy to do much.
Will be scheduling a blood draw in the next week or soon and we will see what comes back.
Usually when my ferritin levels get to about 15 or below, I find it harder and harder to get through a day without napping. Many days I don't have time to nap and find my brain just feels a bit foggy and have no energy to do much.
Will be scheduling a blood draw in the next week or soon and we will see what comes back.
I think I've just hit that level too - it's 6months (I think) since I had my first infusion. I don't have the heart issues I did before then, but I'm utterly exhausted, and its been 6 heavy periods since then.
ReplyDeleteI had ferritin <1 back then so I think it was a good 6 hours worth of rusty nails into my veins the first time.
I hope your levels arent horrible and your infusion if you have to have it isn't too bad.
Have you been in to see your doctor yet? I think it really is easiest to have your infusion before the hemoglobin drops. I think that makes it even more difficult at least it seemed so to me.
DeleteI live in Ontario, Canada and have been on a waiting list for 1 year to see a hematologist. It is crazy. I cannot get injections until the hematologist orders them. I have been severely anemic all of my life. No one knows why. Wondering where about do you live?
ReplyDeleteOh that is absolutely crazy. I have talked to other women who have just had such problems getting appointments in Canada. I am in the US. I hope our system doesn't change but fear we are heading that direction as well. Any idea when you'll be able to see the doctor?
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